News from the Alpha-1 Foundation

News from the Alpha-1 Foundation

Alpha-1 50th anniversary events In April 1963, Swedish researchers Carl-Bertil Laurell and Sten Eriksson published their discovery of Alpha-1 Antitrypsin Deficiency. We’re planning many events to mark the 50th anniversary of the discovery in 2013.  Some of the big events:   Celebration of Life! The Foundation’s flagship awareness and fundraising event, the 13th annual Celebration of Life golf tournament and dinner-dance, will be held Friday, April 26. International Alpha-1 Patient Congress, Barcelona The international highlight of them all: Alphas and Alpha-1 patient groups from many countries will attend the 4th International Alpha-1 Patient Congress and an International Research Conference in Barcelona, Spain, April 11-13. A group of Alphas from the United States will be traveling to Barcelona. For more information contact Angela McBride at amcbride@alpha-1foundation.org  Read more or register for the Barcelona Congress. Gainesville, FL Education Day Feb. 2  GAINESVILLE, FL — Mark Brantly, MD, director of the Alpha-1 program at the University of Florida, will discuss Alpha-1 lung disease and shortness of breath, and Ginger Clark, MD, MS, also of the University of Florida, will discuss Alpha-1 liver disease at the Alpha-1 Education Day in the Hilton University of Florida Conference Center Feb. 2. For information or to register University of Massachusetts Research Update 50 Years of Research toward a Cure for Alpha-1 Antitrypsin Deficiency is the theme for several lay-language talks at the University of Massachusetts Medical School, Worcester, MA, on Saturday, April 20. Distinguished speakers will include Robert A. Sandhaus, MD, PhD of the Alpha-1 Foundation and AlphaNet; Ronald Crystal, MD, of Weil Cornell Medical College, who led the research effort for Alpha-1 augmentation therapy at the National Heart, Lung and Blood Institute during the 1980s; Darrell Kotton, MD, of Boston University School of Medicine; Christian Mueller, PhD, and Terence Flotte, MD, of the University of Massachusetts Medical School. Dr. Flotte will host the event in the just-opened Albert Sherman Center for research. Many more details on these events, as well as a website devoted to 50th anniversary activities, will be unveiled shortly, so stay tuned! See a current list of events for the year!

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