miércoles, 17 de abril de 2013

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EURORDIS TV | www.eurordis.org

Eurordis, Rare Diseases Europe 

The voice of rare disease patients in Europe

 
EURORDIS TV

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Compelling videos from the rare disease community on EURORDIS TV
Today we know the molecular cause of 4,000 diseases, but treatments are only available for 250. What's taking so long? 
Francis Collins: We need better drugs -- now
Today we know the molecular cause of 4,000 diseases, but treatments are available for only 250 of them. So what's taking so long? Geneticist and physician Francis Collins explains why systematic drug discovery is imperative, even for rare and complex diseases, and offers a few solutions -- like teaching old drugs new tricks.
About EUPATI, its objectives, benefits for patients - and its upcoming confer...
12.04.2013
1:56
Chain of Trust - Part 1
11.04.2013
5:18
Part I: Policy Discussion Meeting. "Faster Access to Medicines for Rare Disea...
06.03.2013
99:23
Part II: EURORDIS Policy Meeting. Faster Access to Medicines
04.03.2013
44:58
Rare Disease Day 2013 Message from EURORDIS
18.02.2013
8:15
  • ALL
If Not Now, When?: Laura Rozo at TEDxUNC
05.03.2013
10:19
Emma's Garden: Growing with Gaucher
22.02.2013
10:27
Facing Fabry Together (Feature Film)
21.02.2013
43:46
"Breathe": Patricia's battle living with LAM
04.04.2013
5:51
Brain on fire Rare disease mistaken for mental illness
17.11.2012
6:21
Beyond Batten Disease Foundation Research Strategy to fight Batten disease
01.10.2012
4:43
ESPKU meeting 2012 - European Guidelines on treatment of PKU
13.01.2013
3:03
Rett Syndrome Europe
13.01.2013
9:50
The concept behind the BlackSwan Foundation
22.12.2010
17:37
DysNet Limb Difference Network
21.05.2012
4:24
Paul Monach, M.D, Cryo Explained
20.02.2013
16:48
Pulmonologist Dr. Timothy Cannon Discusses Pulmonary Arterial Hypertension
19.10.2010
10:22
The Life Of Riley - Steven Fishman On The CLOVES Discovery
20.04.2012
2:52
Diagnosis of aHUS
03.04.2013
2:53
What is atypical HUS? Sally Johnson
08.07.2011
31:56
In search of IRDiRC, the International Rare Disease Research Consortium
15.06.2012
13:03
Richard Resnick: Welcome to the genomic revolution
15.09.2011
11:02
Bringing Genomic Medicine into Focus by Eric Green
27.02.2013
87:50
Patients Advancing Rare Disease Research. Interview with Segolène Aymé found...
04.03.2010
5:24
1000 Genomes Project - Defining Genetic Variation in People
02.11.2012
11:22
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Francis Collins: We need better drugs -- now
21.03.2013
14:40
Patient representative participation at European Medicines Agency
04.03.2013
8:40
Access To Medicine
10.09.2012
19:27
Medicines for rare diseases
16.05.2012
5:29
Orphan Drugs: Making Rare Disease Rarer
20.02.2013
56:55
Chain of Trust - Part 1
11.04.2013
5:18
Chain of Trust - Part 2
11.04.2013
4:34
Consultation on the implementing measures for the performance of Pharmacovigi...
27.03.2013
19:13
Antonyia Parvanova on the prices of medicinal products for human use
05.02.2013
2:58
How can legislation improve care in rare diseases?
25.06.2012
3:31
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Rare Disease Day, Feb. 28, 2013 Official Video
11.02.2013
3:03
Rare Disease Day 2013 Message from EURORDIS
18.02.2013
8:15
John Forman - Rare Disease Day Seminar - 28 February 2013
12.03.2013
15:03
Joining Hands sur le Pont des Arts à Paris
25.03.2013
5:16
Rare Disease Day, ABC News 24 Breakfast
05.03.2013
3:31
Part I: Policy Discussion Meeting. "Faster Access to Medicines for Rare Disea...
06.03.2013
99:23
Part II: EURORDIS Policy Meeting. Faster Access to Medicines
04.03.2013
44:58
Andrew Jack - EURORDIS Awards acceptance
04.03.2013
1:18
Terkel Andersen, President EURORDIS at European Conference on Rare Disease 20...
12.06.2012
8:07
Avril Daly Welcome Message European Conference on Rare Disease 2012
05.06.2012
8:31
Initiation au sport en sécurité avec un trouble du rythme cardiaque [FR]
07.04.2013
3:14
CLIP DE PREVENTION - QT LONG [FR]
14.03.2012
2:47
Asociación MPS España [ES]
02.02.2013
15:08
Proyecto de investigación: Síndrome de Lowe [ES]
15.04.2013
2:53
Le parole dentro [IT]
16.12.2012
5:15

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