miércoles, 11 de septiembre de 2013

EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

EURORDIS TV
Compelling videos from the rare disease community on EURORDIS TV
“Half of a Score”: The role of patient registries in rare diseases
Introducing the EPIRARE project, which aims to carry out a feasibility study addressing regulatory, ethical and technical issues associated with the registration of rare disease patients and with the creation of an EU platform for the collection of data
http://www.eurordis.org/tv?vId=7147&cId=9602&wId=1811&mId=15095

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