lunes, 21 de octubre de 2013

PS2-39: Family History Data from Clarity and Ot... [Clin Med Res. 2013] - PubMed - NCBI

PS2-39: Family History Data from Clarity and Ot... [Clin Med Res. 2013] - PubMed - NCBI

Clin Med Res. 2013 Sep;11(3):155. doi: 10.3121/cmr.2013.1176.ps2-39.

PS2-39: Family History Data from Clarity and Other Sources.

Abstract

Background/Aims Family history information is an important tool to identify potential risks for many diseases like cancer or diabetes. Group Health Cooperative (GHC) collects family history at a variety of patient encounters. In 2004, GHC adopted Epic's electronic medical record system. We investigated Clarity, Epic's reporting database, to determine its usefulness as a new source of structured family history data. Methods We compared several data sources for family history of four conditions: colon cancer, colon polyps, breast cancer, and ovarian cancer. We used proportional Venn diagrams for visualization of results. We examined all patients with a known birth date and sex, and any encounter recorded in Clarity between Jan 1, 2004 and Jun 30, 2012. For breast and ovarian cancer, we reviewed females only. Results Among patients with any evidence of family history of a condition, Clarity's FAMILY_HX table independently contributes as many as 75% of patients with available family history; our VDW DX dataset adds an additional 2-20%, while Clarity's PROBLEM_LIST table adds no more than 2-3%. For female GHC patients, the Breast Screening Recruitment and Reminders survey (BSRR), completed at every screening mammogram, remains a key source, being the sole contributor of 25% (21,961 of 86,368) of patients with a family history of breast cancer and 77% (47,487 of 61,484) for ovarian cancer. When comparing information available from different data sources, it is important to be aware of varying definitions. For example, ICD-9 family history diagnosis codes are general, specifying only the primary site with none of the restrictions on relationship degree or age that may be intended in Epic. A key advantage of Clarity family history data and the BSRR survey over ICD-9 codes is that they provide detailed information about exactly which relatives are affected, including affirming a negative history. On the other hand, VDW data are available from both internal and external providers - the remaining sources are available only for GHC group practice patients. Conclusions Examining records from Clarity's FAMILY_HX table may significantly augment, in both numbers and detail, conventional clinical and survey sources of family history data.

KEYWORDS:

Clarity, Family History, Venn Diagram

PMID:
24085960
[PubMed - in process]
PMCID:
PMC3788487
Free PMC Article

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