EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

PATIENTS, ORGANISATIONS, SERVICES

Read about living with a rare disease and the services available Presentations from the workshop on “Training for Social Services Providers” are now available for download Training for Social Services Providers ShareThis EUCERD Joint-Action Workshop on "Training for Social Services Providers", 10-11 October 2013, Copenhagen - Presentations EUCERD Joint Action, by Victoria Hedley, Newcastle University   Specialised Social Services and Integration of RDs into Social Policies: State of the Art, by Raquel Castro, Social Policies Manager, EURORDIS   Introduction to the Workshop: context, theme, purpose, methodology and expected outcomes by Dorica Dan, Project Leader, EURORDIS   Introduction to the Document: purpose, contents, annexed case studies, expected outcomes by Raquel Castro, Social Policies Manager, EURORDIS   Trainingfor professionals working with RD patients by Lisen Mohr, Frambu (Norway)   Edubolirare: training for professionals in RD field by Dorica Dan, Romanian Alliance for Rare Diseases (Romania)   Ågrenska: a holistic approach by Anders Olauson, Ågrenska (Sweden)    Training process for Case Managers at AFMTELETHON by Jean Pierre Lamorte, AFM (France)   “Curricula Prader-Willi-Syndrome”, Adapted Housing Service for Prader–Willi Syndrome by Norbert Hödebeck-Stuntebeck, Diakonische Stiftung Wittekindshof (Germany)   Orphanet’s role in supporting people with Rare Diseases: New tools about disabilities by Odile Kremp, Orphanet (France)   Social Profiles as a dialogue/training tool for social workers by Lene Jensen, Rare Disorders Denmark (Denmark) Page created: 25/10/2013 Page last updated: 05/11/2013