Ethics, Policy and Law

Ethics, Policy and Law

World Health Organization: New open access policy for WHO-authored or WHO-funded research published in journals and books

Current status, challenges, policies, and bioethics of biobanks 
Kang B, et al. Genomics Inform 2013 Dec;11(4):211-7

Data sharing in research: benefits and risks for clinicians. 
E. Antman, BMJ  23 January 2014

Intellectual property and regulation of molecular pathology tests 
Klein RD Cancer J 2014 Jan-2014 Feb;20(1):85-90

Managing incidental genomic findings in clinical trials: fulfillment of the principle of justice 
Dal-Re R, et al. PLoS Med 2014 Jan;11(1):e1001584

Predictive genetic testing of children and the role of the best interest standard 
Ross LF J Law Med Ethics 2013 Dec;41(4):899-906

Realities of data sharing using the genome    as case study - an historical perspective and commentary.  [PDF 506.32 KB] 
Barbara R Jasny EPJ Data Science 2013, 2:1

Returning pleiotropic results from genetic testing to patients and research participants
Jonathan M. Kocarnik, et al. JAMA. 2014 Jan 30

Should research subjects have access to their raw data? C. Johnso, Boston Globe, Jan 23

Trends in genetic patent applications: the commercialization of academic intellectual property 
Kers JG, et al. Eur J Hum Genet 2014 Jan