EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

PATIENTS, ORGANISATIONS, SERVICES

Read about living with a rare disease and the services available Learn more about Therapeutic Recreation Programmes and how to advocate for these services. Download the fact sheet now! Fact Sheet and Case Studies ShareThis Consult our Fact Sheet and Case Studies to learn more about Therapeutic Recreation Programmes and  well established TRP in Europe. Therapeutic Recreation Programmes are any organised recreation activity (summer camp, ad hoc trip) which gives people living with rare diseases (PLWRD) the possibility to take a break from focusing on their disease and treatment to concentrating on fun and leisure. Download the Fact Sheet. Case Study Presentations 2013 Serious Fun Camps, Europe Terry Dignan, European Network of Therapeutic Recreation Programmes, Ireland EURORDIS Membership Meeting 2013 Dubrovnik, Workshop 6: Specialised Social Services: need, policy, case studies 2012 Williams Syndrome Camps, Europe Gábor Pogány, Federation of European Williams Syndrome, Hungary EUCERD Joint-Action Workshop on “Guiding Principles for Specialised Social Services”, 2012, Romania