Genomics|Update|Current ► Ethics, Policy & Law

Genomics|Update|Current

Ethics, Policy & Law

A human rights approach to an international code of conduct for genomic and clinical data sharing 
Knoppers BM, et al. Hum Genet 2014 Feb

Identifying personal genomes by surname inference.
Gymrek M, et al. Science. 2013 Jan 18;339(6117):321-4.

Scientists explore safeguards for genomic data privacy, Medical Press, Mar 1

Anonymous genetic profiles aren't completely anonymous, by Sarah Witman, Inside Science, Feb 27

In the absence of evidentiary harm, existing societal norms regarding parental authority should prevail
Strong K, et al. The American Journal of Bioethics Volume 14, Issue 3, 2014

Industry involvement in publicly funded biobanks
Timothy Caulfield et al. Nature Reviews Genetics 25 February 2014

Innovation, risk, and patient empowerment: the FDA-mandated withdrawal of 23andMe's personal genome service  
Downing NS & Ross JS JAMA 2014 Feb;311(8):793-4

Return of genomic results in the genomic medicine projects of the eMERGE Network 
Iftikhar J. Kullo et al. Frontiers in Genetics, February 2014   

Scientists explore safeguards for genomic data privacy, by Nancy Owano, Medical Xpress Mar 1

Whole genome sequencing is here to stay. What does that mean for genetic privacy? Véronique LaCapra, Northern Public Radio, Feb 26