SCID Resources | Newborn Screening Translational Research Network (NBSTRN)

SCID Resources | Newborn Screening Translational Research Network (NBSTRN)

Statement of Work for National SCID Pilot Study

A collection of educational resources for Severe Combined Immunodeficiency (SCID) and Conditions Associated with T Cell Lymphopenia.

• Immune Deficiency Foundation Parent Brochure on SCID Customizable brochure for positive newborn screen.
• SCID Parents Guide for Positive Diagnosis
• Newborn Screening Act Sheet - Severe Combined Immunodeficiency (SCID) and Conditions Associated with T Cell Lymphopenia
• Immunology Referral Centers

California State Newborn Screening Program Brochures:

• Why Does My Baby Need More Testing for Severe Combined Immunodeficiency (SCID)?
• Why Does My Baby Need More Testing for Severe Combined Immunodeficiency (SCID)? - Spanish Version
• Severe Combined Immunodeficiency (SCID) Fact Sheet
• Why Does My Baby Need Another Newborn Screening Test?
• Why Does My Baby Need Another Newborn Screening Test? - Spanish Version

Massachusetts State Newborn Screening Program Brochures:

• Newborn Screening in Massachusetts: Answers for You and Your Baby

 

New York State Newborn Screening Program Brochures:

• Frequently Asked Questions: Newborn Screening for Severe Combined Immunodeficiency (SCID) Information for Parents
• Frequently Asked Questions: Newborn Screening for Severe Combined Immunodeficiency (SCID) Information for Providers
• Fact Sheet for Providers: New York Becomes the 4th State to Offer Newborn Screening for Severe Combined Immunodeficiency

Wisconsin State Newborn Screening Program Brochures:

• Just a Few Drops of Blood...Can Detect Serious Hidden Disorders in Your Baby