EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

EURORDIS TV

Compelling videos from the rare disease community on EURORDIS TV Run to live. In 2006, Shane James faced death. Stiff Person syndrome, a rare disease that affects one in a million, was destroying his muscles at a devastating rate. He had only one way to save his own life-- running