miércoles, 28 de enero de 2015

EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org



EURORDIS TV
Compelling videos from the rare disease community on EURORDIS TV
Issues with my tissues: A film following Lara’s journey as she attempts to be the first person with Ehlers-Danlos syndrome to walk the London Marathon. Hear from Lara and other EDS patients
Issues with my Tissues
A documentary following Lara Bloom's journey attempting to be the first person with Ehlers-Danlos syndrome to walk the 26.2 miles of the London Marathon. Ehlers-Danlos syndrome is explored and explained throughout the film, sharing many families' stories

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