EHC Updates: Draft Key Questions on Autism Spectrum Disorder Update; Free AHRQ Webinar on Missing Data in Patient Registries

EHC Updates: Draft Key Questions on Autism Spectrum Disorder Update; Free AHRQ Webinar on Missing Data in Patient Registries

The following has been posted to the EHC Web site:

Draft Key Questions

Key questions for the following topic are available for comment until December 8, 2015:

Autism Spectrum Disorder (ASD) Interventions Comparative Effectiveness Review (CER) Update. To access and comment, go to http://www.effectivehealthcare.ahrq.gov/research-available-for-comment/comment-key-questions/?pageaction=displayquestions&topicid=629&questionset=278.

To access all EHC topics currently available for comment, go to http://effectivehealthcare.ahrq.gov/index.cfm/research-available-for-comment/.

AHRQ Webinar: Missing Data in Patient Registries

Date: December 14, 12-1 PM ET

Speakers: 

• Aaron Mendelsohn, PhD, MPH, Director, Epidemiology, Real-World & Late Phase Research
• William Hawkes, PhD, Statistical Scientist, Biostatistics, Real-World & Late Phase Research
• Kristen Bibeau, PhD, MSPH, Director, Epidemiology, Real-World & Late Phase Research

Nearly all patient registries have some missing data, which can affect the accuracy of conclusions by reducing power and introducing bias. This session will describe the major reasons why data are often missing or incomplete in observational studies, such as losses to follow-up and censoring. Registry design and operational strategies that can help minimize missing data will be discussed. The presenters will also describe methods for analyzing datasets with missing data, how to document the extent of missing data, and the importance of transparency to allow audiences to appropriately interpret and apply registry findings. 

This webinar is part of a series hosted by the Agency for Healthcare Research and Quality (AHRQ) Registry of Patient Registries (RoPR) project. The RoPR is a central, searchable database of patient registries that is integrated with ClinicalTrials.gov. In addition to providing information on existing registries, AHRQ is developing the RoPR as a knowledge portal for patient registries, with work underway to add information on registry best practices drawn from the widely used AHRQ publication, Registries for Evaluating Patient Outcomes: A User’s Guide, a web-based discussion forum, and tools for supporting the development and use of standardized outcome measures.

To register for this free webinar, go to https://quintilesconferencing.webex.com/quintilesconferencing/j.php?RGID=r7d4fb1066c4fa5a26c8fb8974a9b16a5.

Effective Health Care
http://effectivehealthcare.ahrq.gov

EHC Updates: Draft Key Questions on Autism Spectrum Disorder Update; Free AHRQ Webinar on Missing Data in Patient Registries