Living with a rare disease can be a challenge everyday

Creating lasting change for the rare disease community!

Dear Víctor Norberto Cerasale
 

Living with a rare disease can be a challenge every day!

Just like Sophia and Eileen many people living with a rare disease are searching for peer support and community knowledge. 

People affected by rare diseases are experts in their own disease. That’s why we created the Discussion Groups!

The Discussion Groups are a safe, online space where people can discuss their experiences and the common challenges they face. 
 

Help us break the isolation that people living with a rare disease face and create more Discussion Groups in 2016

Lenja from EURORDIS