miércoles, 29 de junio de 2016

Join the International Niemann Pick Disease Registry

INPDR

Scientist

PATIENTS ADVANCING RESEARCH


The International Niemann Pick Disease Registry (INPDR) aims to:

  • Share Information - Collecting anonymised patient data from across the world in a consistent format.
  • Gain Knowledge and Insight - establishing the natural history of NP diseases.
  • Improve Research - coordinating research efforts globally.
  • Enable Rapid Diagnostics - facilitating equitable access to state of the art diagnostic tests.

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