martes, 8 de agosto de 2017

European Reference networks for rare diseases: what is the conceptual framework? | Orphanet Journal of Rare Diseases | Full Text

European Reference networks for rare diseases: what is the conceptual framework? | Orphanet Journal of Rare Diseases | Full Text

Biomed Central



Orphanet Journal of Rare Diseases

European Reference networks for rare diseases: what is the conceptual framework?

Orphanet Journal of Rare Diseases201712:137
Received: 16 March 2017
Accepted: 19 June 2017
Published: 7 August 2017

Abstract

With the Cross-Border Healthcare Directive (2011/24/EU) a mandatory framework was established to foster cooperation on a voluntary basis, within European Reference Networks (ERNs). These networks are composed of centres and healthcare providers. The exchange of knowledge is a central issue in this context. A detailed literature survey was carried out to determine the most important factors affecting information and knowledge exchange, as well as learning, in networks and how this can be supported. New communication technologies are identified as key tools for the European Reference Networks (ERN). This study recommends the elaboration of a systematic knowledge use and knowledge generation plan. The data of this study suggests that the future ERNs will mediate the adoption of the digitised and networked information society in medical practice.

Keywords

European Reference networks Health networks Knowledge transfer and expertise Cross-border networks in health care Connectivism Digitisation Connective action

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